Tag: cancer

Death at a Distance

.Reading time 4 minutes.

I saw someone’s Facebook status today:

 

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And I was immediately struck with anger.

At first, I wasn’t sure quite why. I get what they meant. It seems like Ebola’s everywhere! It’s constantly on the news, all over the internet, and everyone’s talking about it. It makes sense to be sick of hearing about it.  We’re bound to get sick of hearing about anything that much!

But still, I couldn’t shake the discomfort that rung in my head over that status. Ebola seems far away, after all, it’s only been diagnosed four times in the US. It’s easy to tuck it away in your mind as something distant that doesn’t affect you and forget why it’s a big deal.

It’s even become a hot topic for jokes on social media:

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de

 

Because so many see this very real disease as a far away concept, we find safety in our distance and it’s easy to make light of it.

But guys….

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4,877 deaths. 9,935 sufferers. That’s not funny. That’s not something to ask to “omg shut up.”

The idea of disease never really hit home for me until my little sister was diagnosed with cancer. Yes, Ebola and cancer are two very different things. But I know what it’s like to watch someone I love very dearly suffer. I know what it’s like to hold my sister’s hand while she cries because she can’t escape the pain or the fear that comes with her disease. I know what it’s like to cry myself to sleep begging God to take her illness away. And I can’t help but imagine a sister somewhere in Africa in a situation very similar to my own, watching her loved one suffer, hearing her cries, and begging for it to all be over- but without the blessings of medicine and technology that my sister has access to.

We are quick to throw on our pink gear for breast cancer awareness and dump ice on our head for ALS because that kind of awareness is fun and easy. I’m not trying to diminish those causes- they are great causes that deserve promotion. But I mean to make note of the fact that when another very real disease with very real consequences is brought to light and gains awareness, people groan that it’s in the news again and make jokes about it on the internet. Because Ebola doesn’t have the fun and cute promotional package, we complain and make light of it and its need for awareness and a solution.

People are suffering and dying from Ebola. Just because that suffering seems far away, doesn’t make it any less significant.

 

This is a guest post from my oldest daughter, Meredith. I begged her to let me post it. 

Pure Joy

.Reading time 4 minutes.

I got to be party to pure, absolute joy this weekend. I have seen such displays on television after a big win in sports or gameshows. This time, it was my little girl who celebrated. After so many losses in the past six months, it was a much needed win.

As a parent, one of the worst things about cancer is being totally helpless. We are forced to sit and watch as one thing after another is taken away from our little girl. Ballet, plays, school, vacations, little things and big things are plucked away as she lays in bed.

Wonderful organizations are out there to give back to these kids. Groups such as the Make-a-Wish Foundation come beside them to give them something to look forward to during their treatment. A very introspective child, Kylie debated long and hard over her wish, finally deciding she wanted to see Aladdin on Broadway.

A few weeks ago, Kylie was asked to be the honored child at Make-a-Wish Georgia’s annual fund-raising Wish Gala. The chairperson of the event took her on a shopping spree for a gown. This day of shopping was unlike any that my girls have been on – especially Kylie. As a fourth child, hand-me-downs are the rule of thumb. If it isn’t obscenely high or dragging the ground, it fits.

Not this time. She was treated like a princess. After a six month hiatus, I saw her old friend, “excitement” start to creep back into her life.

The big night came. We all got dressed up for the Gala.

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She knew she was going to sing with her sister. She knew I was going to speak. She thought of herself as the entertainment and the face of wish-children for the evening. What she didn’t know was that Make-a-Wish had planned a big surprise for her. They had a video from her favorite Broadway performers who granted her wish to go to see Aladdin. Here is her reaction:

 

 

Priceless.  Pure Joy.

After so many months of seeing her disappointed, I can’t look at that video without tears.

You might be wondering if I embarrassed myself and my family in front of the trendier set. I believe the answer is no. With a stern admonition from the start, I spent the evening minding everything I did and said carefully. I paused three seconds before any word escaped my lips. I didn’t spill or break anything. My online tux-buying escapade was made unnecessary by a friend exactly my size who owns a tuxedo. I did not step on anyone’s dress or trip on my way to the stage. I didn’t try to fit in by discussing the beach chalet I own in Vermont.

It was a lovely evening. Kylie was the star…. And she deserves it.